AKction: Aboriginal Kidney Care Together Improving Outcomes Now

Adelaide RNA

Acknowledgement

We acknowledge the Kaurna people as the Traditional owners and carers of the Tarntanyangga (Adelaide Plains, South Australia) where AKction began. We acknowledge all Aboriginal and Torres Strait Islander people of Australia whose sovereignty remains unceded and who we each remain accountable to.   

We acknowledge First Nations People worldwide and pay our deepest respect to you and your families. We also acknowledge AKction community supporters, researchers and health professionals as effective accomplices who know when to step aside, step up and step back to ensure our voices are amplified to lead change.  

AKction: Aboriginal Kidney Care Together Improving Outcomes Now is an ongoing project aiming to improve the experiences and outcomes of kidney care with and for First Nations patients, families and community members in South Australia.

Applying decolonising and participatory action research, this project is led by a reference team of Kidney Warriors – First Nations People living with kidney disease, working closely with researchers, healthcare staff, and networks across the wider community to advocate for and conduct collaborative research with meaningful outcomes together.

AKction received MRFF funding from 2018 – 2021, and NHMRC Ideas Grant funding since 2021 through to 2027. 

AKction Kidney Warriors and Reference Team (A2RT) members, families, kidney nurses, nephrologists, teaching staff, research students, dental staff, and AKction team members. AKction Kidney Warriors and Reference Team (A2RT) members, families, kidney nurses, nephrologists, teaching staff, research students, dental staff, and AKction team members.

Prioritising First Nations Kidney Warriors and their families’ lived experiences, strengths and priorities is essential to addressing gaps in and decolonising healthcare. This is exactly what AKction is aiming to achieve.  

Kidney disease is one of chronic diseases that affects First Nations peoples at far higher rates and at younger ages than for non-First nations Australians. First Nations voices have historically gone unheard in the quest to close this gap. 

We’re collaborating to bring together First Nations community members, health professionals and researchers to co-create positive change and deliver culturally safer and responsive clinical care experiences and outcomes. 

The AKction key principles and goals are within the acronym:  

Aboriginal: Aboriginal leadership, ownership and governance over all AKction activities ensures Aboriginal and Torres Strait Islander peoples and communities are in the driver’s seat. The extensive lived experience across the AKction team of Kidney Warriors who are also NHMRC and MRFF Chief investigators is well supported by project staff. This self-determination is AKction’s super-power.

Kidney Care: The impact of kidney disease and ongoing treatment for kidney failure is immense. For Aboriginal people, Kidney care is more than just treating biological illness – it involves the whole person, their family and community.  

Together: This word defines AKction which brings together Kidney Warriors, community members, Aboriginal health practitioners and staff, doctors, nurses, allied health professionals, researchers, students, professional organisations and health services to advance a common goal in a unique relational approach. This is absolutely essential to making progress together. 

Improving Outcomes: The pendulum must swing towards practical equity in health, wellbeing and thriving rather than just surviving. The AKction movement is motivated by what is happening every day for Kidney Warriors, family and community members – improving outcomes is our core business.  

Now: The time for AKction is now, and it is ongoing. The AKction project was integrally involved in the inaugural First Nations kidney care guidelines and national taskforce for improving kidney transplant access. 

With many national and local activities and initiatives fluctuating due to shifting political and funding agendas, AKction has become an integral space where the voices and priorities of Kidney Warriors continue to be central, heard and responded to.

By centring Indigenous leadership and knowledges, AKction continues to decolonise research, education and practice. 

AKction supports Indigenous Governance and Data Sovereignty by First Nations People who have ownership and control of their knowledge and the way research is conducted across all stages of data collection, analysis, interpretation, and knowledge translation. Kidney Warriors hold roles as chief investigators and are positioned as co-researchers and co-authors. 

This reminds us all that First Nations ways of knowing, being and doing belong to Kidney Warriors, their families and communities.

Our vision

First Nations Peoples in South Australia who experience kidney disease are strong, are speaking back to the health system, are engaged and leading decolonising practices, in a culturally safe, anti-racist health system supported by effective, respectful partnerships with communities, health professionals, researchers and allied health services.

Our Working Together Agreement (WTA) is a living document that guides the way our teams work together. 

AKction conducts collaborative, decolonising and participatory action research (PAR) with Aboriginal and Torres Strait islander kidney warriors, family members and communities, health professionals, health services, academics and researchers to improve kidney care in South Australia. Each research activity and output begins with and circles back to Kidney Warriors. 

There are four complementary sub studies and ongoing areas of collaboration:

  • Indigenous Governance: “We are more than our disease” 
  • Support for Kidney Warriors: “We know what it is like” 
  • Kidney (health) journey mapping: “No one else should have to experience this”
  • Cultural safety in kidney care: “Sometimes they just don’t get it” 

AKction specific research activities and outputs

View AKction’s research resources, peer reviewed publications, presentations and other outputs.

Additional resources 

Contact the team: akction@adelaide.edu.au

The AKction project is made up of four teams who collaboratively work together on research activities. These include the AKction Reference Team, AKction Project Team, Chief and Associated Investigators, and Networks.


Our reference team are First Nations people, including Elders. They guide all aspects of the project and work as patient experts, family, and carers. Elders provide guidance, cultural advice and healing activities to the teams.

  • Aunty Christine Franks (Yuin, NSW)
  • Aunty Denise Champion (Adnyamathanha SA)
  • Derek Forbes (Kaurna & Narungga SA)
  • Jared Kartinyeri (Ngarrindjeri & Wiradjuri SA)
  • Kelli Owen (Kaurna, Ngarrindjeri & Narungga SA)
  • Lili Simpson-Lyttle (Saibai/ Daru Islands Torres Strait)
  • Marissa Wilson (Warlpiri & Anmatyere SA) 
  • Ramon Gadd (Bajala, K’gari Island SA)
  • Rhanee Lester (Adnyamathanha & Kuyani SA)
  • Shellander Champion (Adnyamathanha SA)
  • Trudy Reid (Kokatha SA)

Kidney Warrior Matriarchs who have returned to the Dreaming:

  • Nari Sinclair (has gone to the Dreaming 2023)
  • Tjingilya (Flower) Williamson (has gone to the Dreaming 2023)

Our investigators facilitate the collaboration of the project across South Australia.

Chief Investigators 

  • CIA – Dr Kim O’Donnell
  • CIB – Professor Janet Kelly
  • CIC – Ms Kelli Owen
  • CID – Ms Rhanee Lester
  • CIE – Ms Nari Sinclair (has gone to the Dreaming 2023)
  • CIF – Dr Samantha Bateman
  • CIG – Professor Josée Lavoie

Associate Investigators 

  • Professor Odette Pearson
  • Dr Tamara Mackean
  • Professor Shilpanjali Jesudason
  • Professor Stephen McDonald
  • Dr Susan Crail
  • Ms Eleanor Garrard
  • Dr Melissa Arnold-Ujvari
  • Dr Richard Le Leu
  • Professor Lisa Jamieson

Our project team include both Adelaide University staff members and Honours and HDR students who plan, coordinate and work on AKction projects. Current project team members include:

  • Kim O’Donnell 
  • Janet Kelly
  • Kelli Owen
  • Rhanee Lester
  • Alyssa Cormick
  • Melissa Arnold-Ujvari 
  • Elizabeth (Liz) Rix
  • Brandon O’Connor
  • Monica Lawrence

We work collaboratively with a range of organisations including:

  • Aboriginal and Torres Strait Islander peoples, families and communities 
  • Aboriginal Chronic Disease Consortium
  • Aboriginal Community Controlled Health Services
  • Central Northern Adelaide Renal & Transplantation Service (CNARTS) 
  • Caring for Australasians and New Zealanders with Kidney Impairment (CARI)
  • Centre for Aboriginal Studies in Music
  • Community Outreach Dental Program (CODP)
  • Fay Fuller Foundation
  • Indigenous Oral Health Unit
  • Kanggawodli Hostel
  • Kidney Health Australia
  • Local Health Networks
  • Lowitja Institute
  • Menzies – School of Health Research
  • National Indigenous Kidney Transplantation Taskforce (NIKTT)
  • Purple House
  • SA Health 
  • SAHMRI – Wardliparingga Health Equity 
  • TAFE SA
  • Transplantation Society of Australia and New Zealand (TSANZ). 

Contact us

AKction: Aboriginal Kidney Care Together Improving Outcomes Now 

Project Co-Leads: Dr Kim O’Donnell and Prof Janet Kelly

Email

Email: akction@adelaide.edu.au